Guideline 11: State Monitoring and Enforcement of Human Rights
41.States should ensure monitoring and enforcement mechanisms to guarantee
HIV-related human rights, including those of people living with HIV/AIDS, their
families and communities.
States should collect information on human rights and HIV/AIDS and, using
this information as a basis for policy and programme development and
reform, report on HIV-related human rights issues to the relevant United
Nations treaty bodies as part of their reporting obligations under human
rights treaties.
States should establish HIV/AIDS focal points in relevant government
branches, including national AIDS programmes, police and correctional
departments, the judiciary, government health and social service providers
and the military, for monitoring HIV-related human rights abuses and
facilitating access to these branches for disadvantaged and vulnerable
groups. Performance indicators or benchmarks showing specific compliance
with human rights standards should be developed for relevant policies and
programmes.
States should provide political, material and human resources support to
AS0s and CB0s for capacity-building in human rights standards development
and monitoring. States should provide human rights NG0s with support for
capacity-building in HIV-related human rights standards and monitoring.
States should support the creation of independent national institutions for
the promotion and protection of human rights, including HIV related rights,
such as human rights commissions and ombudspersons and/or appoint
HIV/AIDS ombudspersons to existing or independent human rights agencies,
national legal bodies and law reform commissions.
States should promote HIV-related human rights in international forums and
ensure that they are integrated into the policies and programmes of
international organizations, including United Nations human rights bodies, as
well as in other agencies of the United Nations system.
Furthermore.
States should provide intergovernmental organizations with the material and human
resources required to work effectively in this field.
Commentary on Guideline 11
41.Standard-setting and promotion of HIV-related human rights standards alone
are insufficient to address human rights abuses in the context of
HIV/AIDS. Effective mechanisms must be established at the national and community levels
to monitor and enforce HIV-related human rights. Governments should see this as
part of their national responsibility to address HIV/AIDS. The existence of
monitoring mechanisms should be publicized, particularly among PLHA networks, in
order to maximize their use and impact. Monitoring is necessary to collect
information, formulate and revise policy, and establish priorities for change and
benchmarks for performance measurement. Monitoring should be both positive
and negative, i.e. reporting on good practice to provide models for others to
emulate, as well as identifying abuses. The non-governmental sector can provide
an important means of monitoring human rights abuses, if resourced to do
so, since it frequently has closer contact with the affected communities. Formal
grievance bodies may be too bureaucratic and their procedures too
time-consuming and stressful to attract a representative sample of
complaints. Training is necessary for community participants to develop skills so as to be able
to analyse and report findings at a level of quality which is credible for
States and international human rights bodies.
Guideline 12: International Cooperation
41.States should cooperate through all relevant programmes and agencies of the
United Nations system, including UNAIDS, to share knowledge and experience
concerning HIV-related human rights issues, and should ensure effective
mechanisms to protect human rights in the context of HIV/AIDS at the
international level.
The Commission on Human Rights should take note of the present Guidelines
and of the report on the Second International Consultation on HIV/AIDS
and Human Rights and request States to carefully consider and implement
the Guidelines in their national, sub national and local responses to HIV/AIDS
and human rights.
The Commission on Human Rights should request human rights treaty
bodies, special reporters and representatives and its working groups to
take note of the Guidelines and include in their activities and reports all
issues arising under the Guidelines relevant to their mandates.
The Commission on Human Rights should request UNAIDS, its co-sponsors
(UNDP, UNESCO, UNFPA, UNICEF, WHO and the World Bank) and other
relevant United Nations bodies and agencies to integrate the promotion of
the Guidelines throughout their activities.
The Commission on Human Rights should appoint a special reporter on
human rights and HIV/AIDS with the mandate, inter alia, to encourage and
monitor implementation of the Guidelines by States, as well as their
promotion by the United Nations system, including human rights bodies,where applicable.
The Commission on Human Rights should encourage the Office of the United
Nations High Commissioner for Human Rights to ensure that the Guidelines
are disseminated throughout that Office and are incorporated into all its
human rights activities and programmes, particularly those involving
technical cooperation, monitoring and support to human rights bodies and
organs.
States, in the framework of their periodic reporting obligations to United
Nations treaty monitoring bodies and under regional conventions, should
report on their implementation of the Guidelines and other relevant
HIV/AIDS-related human rights concerns arising under the various treaties.
States should ensure, at the country level, that their cooperation with
UNAIDS Theme Groups includes promotion and implementation of the
Guidelines, including the mobilization of sufficient political and financial
support for such implementation.
States should work in collaboration with UNAIDS, the Office of the United
Nations High Commissioner for Human Rights and non-governmental and
other organizations working in the field of human rights and HIV/AIDS
to Support translation of the Guidelines into national and minority
languages; Create a widely accessible mechanism for communication and
coordination for sharing information on the Guidelines and HIV-related
human rights; Support the development of a resource directory on international
declarations/treaties, as well as policy statements and reports on
HIV/AIDS and human rights, to strengthen support for the implementation of the Guidelines;
Support multicultural education and advocacy projects on HIV/AIDS
and human rights, including educating human rights groups with
regard to HIV/AIDS and educating HIV/AIDS and vulnerable groups in
human rights issues and strategies for monitoring and protecting
human rights in the context of HIV/AIDS, using the Guidelines as an
educational tool; Support the creation of a mechanism to allow existing human rights
organizations and HIV/AIDS organizations to work together
strategically to promote and protect the human rights of people living
with HIV/AIDS and those vulnerable to infection, through implementation of the Guidelines; Support the creation of a mechanism to monitor and publicize human
rights abuses in the context of HIV/AIDS; Support the development of a mechanism to mobilize grass-roots
responses to HIV-related human rights concerns and implementation
of the Guidelines, including exchange programmes and training among
different communities, both within and across regions; Advocate that religious and traditional leaders take up HIV-related
human rights concerns and become part of the implementation of the
Guidelines; Support the development of a manual that would assist human rights
and AIDS service organizations in advocating the implementation of
the Guidelines; Support the identification and funding of NG0s and AS0s at country
level to coordinate a national NGO response to promote the
Guidelines; Support, through technical and financial assistance, national and
regional NGO networking initiatives on ethics, law and human rights to
enable them to disseminate the Guidelines and advocate their
implementation. States, through regional human rights
mechanisms, should promote the
dissemination and implementation of the Guidelines and their integration
into the work of these bodies.
Commentary on Guideline 12
47.The United Nations bodies, agencies and programmes comprise some of the
most effective and powerful forums through which States can exchange
information and expertise on HIV-related human rights issues and build support
among themselves to implement a rights-based response to HIV/AIDS. States, in
their work with and governance of these bodies, can use these bodies as tools
for promoting the Guidelines. States must, however, both encourage and enable
these bodies through political and financial support, to take effective and
sustained action in terms of promoting the Guidelines and must respond positively
to the work done by these bodies with steps taken at the national level.
Conclusion
47.States are urged to implement these Guidelines in order to ensure respect for
the human rights of those affected by HIV/AIDS and to ensure an effective and
inclusive public health response to HIV/AIDS. These Guidelines are based on
experience gained from best practices, which have proven to be effective over
the last 15 years. By implementing these Guidelines, States are able to avoid
negative and coercive policies and practices, which have had a devastating
impact on people's lives and on national HIV/AIDS
programmes.
47.The practical aspects of protecting HIV-related human rights are more likely to
be addressed if there is leadership on this issue in the executive and legislative
arms of government and if multisectoral structures are established and
maintained. Vital to any policy development and implementation is the
involvement of affected communities, together with relevant professionals and
religious and community leaders, as equal partners in the process.
47.As national legislation provides a critical framework for the protection of
HIV-related human rights, many of the Guidelines relate to the need for law
reform. Another major instrument of social change is the provision of a supportive
and enabling environment within which to conduct HIV-related prevention, care
and support activities. Part of this enabling environment can be obtained by
changing attitudes through general and targeted education, public information
and education campaigns which deal with HIV-related rights, tolerance and
inclusion. Another part of this enabling environment involves the empowerment of
women and vulnerable groups to deal with HIV/AIDS by taking
measures to improve their social and legal status and to assist them in mobilizing their
communities.
47.HIV/AIDS continues to challenge our societies in many ways. It is incumbent
on States, communities and individuals to address extremely difficult and
pervasive societal issues which have always been present in our societies, and to
identify solutions thereto. With the advent of HIV/AIDS, we can no longer afford
to evade these issues because to do so threatens the lives of millions of men,
women and children. These issues relate to the roles of women and men, the
status of marginalized or illegal groups, the obligations of States concerning
health expenditure and the role of law in achieving public health goals, the
content of privacy between individuals and between individuals and their
governments, the responsibility and ability of people to protect themselves and
others, as well as the relationship between human rights, health and life. These
Guidelines are means for giving guidance on these difficult matters-guidance
which has evolved from the international human rights regime and from the
courageous and inspiring work of millions the world over who have demonstrated
that protecting the human rights of people means protecting their health, lives
and happiness in a world with HIV/AIDS.
II. Recommendations for dissemination and implementation of the Guidelines on HIV/AIDS and human rights
47.At the Second international Consultation on HIV/AIDS and Human Rights, the
participants considered strategies for dissemination and implementation of the
Guidelines. It was considered that there are three groups of key actors who,
jointly and separately, are critical to the implementation of the Guidelines, namely
States, the United Nations system, regional intergovernmental organizations and
non-governmental and community-based organizations. Recommendations for
measures that these actors are encouraged to take in order to ensure that the
Guidelines are widely disseminated and effectively implemented are set out below.
A. States
47.States, at the highest level of Government (head of State, Prime Minister
and/or relevant ministers), should promulgate the Guidelines and ensure that the
political weight of the Government is behind the dissemination and implementation
of the Guidelines throughout all branches of the executive, legislature and
judiciary.
47.States, at the highest level of Government, should assign appropriate
governmental bodies/staff the responsibility to devise and implement a
strategy for dissemination and implementation of the Guidelines and establish periodic
monitoring of this strategy through, for example, reports to the Executive Office
and public hearings. States should establish within the executive
branch a staff member(s) responsible for this strategy.
47.States should disseminate the Guidelines, endorsed by the executive, to
relevant national bodies, such as interministerial and parliamentary committees on
HIV/AIDS and national AIDS programmes, as well as to provincial and local-level
bodies.
47.States, through these bodies, should give formal consideration to the
Guidelines in order to identify ways to build them into existing activities and
prioritize necessary new activities and policy review. States should also organize
consensus workshops with the participation of non-governmental organizations,
community-based organizations and AIDS service organizations (AS0s), networks
of people living with HIV/AIDS (PLHAs), networks on ethics, law, human rights
and HIV, United Nations Theme Groups on HIV/AIDS, as well as political and
religious groups: To discuss the relevance of the Guidelines to the local situation, to identify
obstacles and needs, to propose interventions and solutions, and to
achieve consensus for the adoption of the Guidelines;
To elaborate national, provincial and local plans of action for
implementation and monitoring of the Guidelines within the local context; To mobilize and ensure the commitment of relevant governmental
officials To apply the Guidelines as a working tool to be integrated into their
individual work plans.
57.States, at national, sub national and local levels, should establish mechanisms
to receive, process and refer issues, claims and information in relation to the
Guidelines and to the human rights issues raised therein. States should create
focal points to monitor the implementation of the Guidelines in relevant
government departments.
57.States,inwaysconsistentwithjudicialindependence,should
disseminate the
Guidelines widely throughout the judicial system and use them in the development
of jurisprudence, conduct of court cases involving HIV related matters and
HIV-related training/continuing education of judicial officers.
57.States should disseminate the Guidelines throughout the legislative branch of
Government and particularly to parliamentary committees involved in the
formulation of policy and legislation relevant to the issues raised in the Guidelines.
Such committees should assess the Guidelines to identify priority areas for action
and a longer-term strategy to ensure that relevant policy and law are in
conformity with the Guidelines.
B. United Nations system and regional intergovernmental bodies
57.The United Nations Secretary-General should submit the Guidelines to the
Commission on Human Rights as part of the report on the Second International
Consultation on HIV/AIDS and Human Rights.
61.The Secretary-General should transmit the Guidelines to heads of State: Recommending that the document be distributed nationally through the
appropriate channels; Offering, within the mandates of UNAIDS and the Office of the United
Nations High Commissioner for Human Rights, technical cooperation in
facilitating the implementation of the Guidelines; Requesting that compliance with the Guidelines be included in national
reports to existing human rights treaty bodies; Reminding Governments of the responsibility to uphold international human
rights standards in promoting compliance with the Guidelines.
62.The Secretary-General should transmit the Guidelines to the heads of all
relevant United Nations bodies and agencies, requesting that they be widely
disseminated throughout the relevant programmes and activities of the bodies
and agencies. The Secretary-General should request that all relevant United
Nations bodies and agencies consider their activities and programmes on
HIV/AIDS in the light of the provisions of the Guidelines and support the
implementation of the Guidelines at national level.
62.The Commission on Human Rights and the Sub-Commission on Prevention of
Discrimination and Protection of Minorities, as well as all human rights treaty
bodies, should consider and discuss the Guidelines with a view to incorporating
relevant aspects of the Guidelines into their respective mandates. Human rights
treaty bodies, in particular, should integrate the Guidelines, as relevant, in their
respective reporting guidelines, questions to States and when developing
recommendations and general comments on related subjects.
62.The Commission on Human Rights should appoint a special reporter on
human rights and HIV/AIDS with the mandate, inter alia, to encourage and
monitor implementation of the Guidelines by States, as well as their promotion by
the United Nations system, including human rights bodies, where applicable.
62.The Office of the United Nations High Commissioner for Human Rights should
ensure that the Guidelines are disseminated throughout that Office and
incorporated into its activities and programmes, particularly those involving
support for the United Nations human rights bodies, technical assistance and
monitoring. This should be coordinated by a staff member with exclusive
responsibility for the Guidelines. Similarly, the United Nations Division for the
Advancement of Women should ensure the full integration of the Guidelines into
the work of the Committee on the Elimination of Discrimination Against Women.
62.UNAIDS should transmit the Guidelines throughout the system-to co-sponsors
of the UNAIDS Programme Coordinating Board, United Nations Theme Groups on
HIV/AIDS, UNAIDS staff, including country programme advisers and focal
points-and should ensure that the Guidelines become a framework for action for
the work of the United Nations Theme Groups on HIV/AIDS and UNAIDS staff;Theme Groups should use the Guidelines to assess the HIV-related human rights,
legal and ethical situation at country level and to elaborate the best means for
supporting implementation of the Guidelines at that level.
62.Regional bodies (such as the Inter-American Commission on Human Rights, the
Organization of American States, the African Commission on Human and Peoples'
Rights, the Organization of African Unity, the European Commission on Human
Rights, the European Commission, the Council of Europe, the Association of
South-East Asian Nations, etc.) should receive the Guidelines and make them
available to the largest possible number of members and relevant divisions with a
view to assessing how their activities might be made consistent with the
Guidelines and promote their implementation.
62.Specialized agencies and other concerned bodies (such as the International
Labour Organization, the International Organization for Migration, the Office of
the United Nations High Commissioner for Refugees, the United Nations Research
Institute for Social Development and the World Trade Organization) should
receive the Guidelines and transmit them widely among members and throughout
their programmes with a view to assessing how their activities can be made
consistent with the Guidelines and promote their implementation.
C. Non-governmental organizations
62.NG0s should implement the Guidelines within a broad framework of
communication in terms of HIV and human rights, including the establishment of
ongoing communication between the HIV/AIDS community and the human rights
community by:
Establishing contacts at the international, regional and local levels between
networks of AS0s, human rights NG0s, and people living with
HIV/AIDS Developing mechanism(s) for ongoing communication and dissemination and
implementation of the Guidelines, such as a bulletin board and/or home
page on the Internet allowing for input and exchange of information on
human rights and HIV and database linkages between groups working on
human rights and HIV; Networking with human rights NG0s at meetings of United Nations human
rights bodies; Promoting discussion of the Guidelines in their newsletters and other
publications, as well as through other media; Developing an action-oriented and accessible version(s) of the
Guidelines Developing a strategy and process for the dissemination of the Guidelines and
seeking funding and technical cooperation in that regard.
70. Non-governmental organizations at the regional level should:
Establish or use existing focal points to disseminate the Guide lines, with
popularization and/or training; Establish a regional "technical group" to introduce the Guidelines to the
region;
Use the Guidelines as a tool for advocacy, interpretation, monitoring abuse
and establishing best practices; Prepare regular reports on the implementation of the Guidelines to human
rights bodies (human rights treaty bodies and United Nations
extra-conventional fact-finding mechanisms, such as special reporters
and representatives, as well as regional commissions) and other relevant
international agencies; Bring cases of HIV/AIDS-related discrimination and other violations of
human rights in the context of HIV/AIDS to regional human rights judicial
and quasi-judicial mechanisms.
71.In order to advocate the Guidelines, NG0s at the national
level should obtain consensus on their acceptance and establish a joint strategy with governmental and
non-governmental partners as a baseline for monitoring the
Guidelines, through the following actions:
Hold national NGO strategy meetings on the Guidelines that include human
rights NG0s (including women's organizations and prisoners' rights
organization), AS0s, community-based organizations, networks on ethics,
law, human rights and HIV and networks of people living with HIV/AIDS;
Hold meetings with national governmental human rights bodies;
Hold meetings with national Government (relevant ministries), legislative
and the judiciary;
Establish or use existing national focal points to gather information and
develop systems of information exchange on HIV and human rights,
including the Guidelines.
III International human rights obligations and HIV /
AIDS Introduction
HIV/AIDS, human rights and public health 72.Several years of experience in addressing the HIV/AIDS epidemic have
confirmed that the promotion and protection of human rights
constitute an essential component in preventing transmission of HIV and reducing the
impact of HIV/AIDS. The protection and promotion of human rights are
necessary both to the protection of the inherent dignity of persons
affected by HIV/AIDS and to the achievement of the public health goals of
reducing vulnerability to HIV infection, lessening the adverse impact of
HIV/AIDS on those affected and empowering individuals and communities to
respond to HIV/AIDS.
72.In general, human rights and public health share the common objective
to promote and to protect the rights and well-being of all individuals. From
the human rights perspective, this can best be accomplished by promoting
and protecting the rights and dignity of everyone, with special emphasis on
those who are discriminated against or whose rights are
otherwise interfered with. Similarly, public health objectives can best be accomplished
by promoting health for all, with special emphasis on those who are
vulnerable to threats to their physical, mental or social well-being. Thus,health and human rights complement and mutually reinforce each other in
any context. They also complement and mutually reinforce each other in
the context of HIV/AIDS.
72.One aspect of the interdependence of human rights and public health is
demonstrated by studies showing that HIV prevention and care programmes
with coercive or punitive features result in reduced participation and
increased alienation of those at risk of infection. In particular, people will
not seek HIV-related counselling, testing, treatment and support if this
would mean facing discrimination, lack of confidentiality and other negative
consequences. Therefore, it is evident that coercive public health measures
drive away the people most in need of such services and fail to
achieve their public health goals of prevention through behavioural change, care
and health support.
75. Another aspect of the linkage between the protection of human
rights and effective HIV/AIDS programmes is apparent in the fact
that the incidence or spread of HIV/AIDS is disproportionately high
among some populations. Depending on the nature of the epidemic
and the legal, social and economic conditions in each country,groups that may be disproportionately affected include women,
children, those living in poverty, minorities, indigenous people,
migrants, refugees and internally displaced persons, people with
disabilities, prisoners, sex workers, men having sex with men and
injecting drug users-that is to say groups who already suffer from a
lack of human rights protection and from discrimination and/or are
marginalized by their legal status. Lack of human rights protection
disempowers these groups to avoid infection and to cope with
HIV/AIDS, if affected by it.
76.Furthermore, there is growing international consensus that a broadly
based, inclusive response, involving people living with HIV/AIDS in all its
aspects, is a main feature of successful HIV/AIDS programmes. Another
essential component of comprehensive response is the facilitation and
creation of a supportive legal and ethical environment, which is protective
of human rights. This requires measures to ensure that
Governments, communities and individuals respect human rights and human dignity and
act in a spirit of tolerance, compassion and solidarity.
76.One essential lesson learned from the HIV/AIDS epidemic is that
universally recognized human rights standards should guide policy makers in
formulating the direction and content of HIV-related policy and form an
integral part of all aspects of national and local responses to HIV/AIDS.
A. Human rights standards and the nature of State obligations
76.The Vienna Declaration and Programme of Action, adopted at the World
Conference on Human Rights in June 1993 affirmed that all human rights are
universal, indivisible, interdependent and interrelated. While the significance
of national and regional particularities and various historical, cultural and
religious backgrounds must be borne in mind, States have the
duty regardless of their political, economic and cultural systems, to promote andprotect universal human rights standards and fundamental freedoms.
76.A human rights approach to HIV/AIDS is, therefore, based on these
State obligations with regard to human rights protection. HIV/AIDS
demonstrates the indivisibility of human rights since the realization of
economic, social and cultural rights, as well as civil and political rights, is
essential to an effective response. Furthermore, a rights-based approach
to HIV/AIDS is grounded in concepts of human dignity and equality which
can be found in all cultures and traditions.
76.The key human rights principles, which are essential to effective State
responses to HIV/AIDS are to be found in existing international instruments,
such as the Universal Declaration of Human Rights, the International
Covenants on Economic, Social and Cultural Rights and on Civil and Political
Rights, the International Convention on the Elimination of All Forms of Racial
Discrimination, the Convention on the Elimination of All Forms of
Discrimination against Women, the Convention against Torture and Other
Cruel, Inhuman or Degrading Treatment or Punishment and the Convention
on the Rights of the Child. Regional instruments, namely the American
Convention on Human Rights, the European Convention for the Protection
of Human Rights and Fundamental Freedoms and the African Charter on
Human and Peoples' Rights also enshrine State obligations applicable to
HIV/AIDS. In addition, a number of conventions and recommendations of
the International Labour Organization are particularly relevant to the
problem of HIV/AIDS, such as ILO instruments concerning discrimination in
employment and occupation, termination of employment, protection of
workers' privacy, and safety and health at work.
Among the human rights principles relevant to HIV/AIDS are, inter alia:
The right to non-discrimination, equal protection and equality before the
law;
The right to life;
The right to the highest attainable standard of physical and mental health;
The right to liberty and security of person;
The right to freedom of movement;
The right to seek and enjoy asylum;
The right to privacy;
The right to freedom of opinion and expression and the right to freely
receive and impart information;
The right to freedom of association;
The right to work;
The right to marry and to found a family;
The right to equal access to education;
The right to an adequate standard of living,
The right to social security, assistance and welfare;
The right to share in scientific advancement and its benefits;
The right to participate in public and cultural life;
The right to be free from torture and cruel, inhuman or degrading
treatment or punishment.
76.Particular attention should be paid to human rights of children and
women.
B. Restrictions and limitations
76.Under international human rights law, States may impose restrictions on some
rights, in narrowly defined circumstances, if such restrictions are necessary to
achieve overriding goals, such as public health, the rights of others, morality,public order, the general welfare in a democratic society and national security.Some rights are
non-derivable and cannot be restricted under any circumstances. In order for restrictions on human rights to be legitimate, the
State must establish that the restriction is: Provided for and carried out in accordance with the law, i.e.
according to specific legislation which is accessible, clear and
precise, so that it is reasonably foreseeable that individuals will
regulate their conduct accordingly; Based on a legitimate interest, as defined in the provisions
guaranteeing the rights; Proportional to that interest and constituting the least intrusive and
least restrictive measure available and actually achieving that
interest in a democratic society, i.e. established in a decision-making
process consistent with the rule of law. Public health is most often cited by States as a basis for
restricting human rights in the context of HIV/AIDS. Many such
restrictions, however, infringe on the principle of non-discrimination, for example when HIV status is used as the
basis for differential treatment with regard to access to education, employment, health care, travel, social security,
housing and asylum. The right to privacy is known to have been
restricted through mandatory testing and the publication of HIV
status and the right to liberty of person is violated when HIV is
used to justify deprivation of liberty or segregation. Although
such measures may be effective in the case of diseases which
are contagious by casual contact and susceptible to cure, they
are ineffective with regard to HIV/AIDS since HIV is not casually transmitted. In addition, such coercive measures are
not the least restrictive measures possible and are often
imposed discriminatorily against already vulnerable groups.
Finally, and as stated above, these coercive measures drive
people away from prevention and care programmes, thereby limiting the effectiveness of public health outreach. A public
health exception is, therefore, seldom a legitimate basis for
restrictions on human rights in the context of HIV/AIDS.
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