With regard to health care, Nation States, from time to time, have
succeeded in promulgating diverse international declarations, protocols and
guidelines. Prominently, the following reflect international concern towards
healthcare.
• Universal Declaration of Human rights
• International Covenant on Economic, Social and Cultural rights
International Covenant on civil and Political Rights Optional Protocol to the International Covenant on Civil and Political
Rights HIV/AIDS and Human Rights : International Guidelines
Declaration on the Rights of Mentally Retarded persons Universal Declaration on the Eradication of Hunger and Malnutrition Declaration on the Rights of Disabled Persons
HIV / AIDS and Human Rights
International Guidelines
1. The Commission on Human Rights, at its fifty-second session, in its resolution
1996/43 of 19 April 1996, requested the then United Nations High Commissioner
for Human Rights, inter alia, to continue his efforts, in cooperation with UNAIDS
and non-governmental organizations, as well as groups of people living with HIV /AIDS, towards to elaboration of guidelines on promoting and protecting respect
for human rights in the context of HIV / AIDS. In the same resolution, the
Commission requested that the Secretary-General prepare, for the consideration
of the Commission at its fifty-third session, a report on the
above-mentioned guidelines, including the outcome of the second expert consultation on human
rights and AIDS, and on their international dissemination.
2. The call for guidelines on human rights and HIV / AIDS was based on a
recommendation contained in an earlier report of the Secretary-General to the
Commission at its fifty-first session (E/CN.4/1995/45, para. 135), which stated
that "the development of such guidelines or principles could provide an
international framework for discussion of human rights considerations at the
national, regional and international levels in order to arrive at a more
comprehensive understanding of the complex relationship between the public
health rationale and the human rights rationale of HIV / AIDS. In
particular, Governments could benefit from guidelines that outline clearly how human rights
standards apply in the area of HIV / AIDS and indicate concrete and specific
measures, both in terms of legislation and practice, that should be undertaken".
3. In response to the above requests, the Office of the United Nations High
Commissioner for Human Rights and the Joint United Nations Programme on HIV /
AIDS (UNAIDS) convened the Second International Consultation on HIV / AIDS
and Human Rights in Geneva, from 23 to 25 September 1996. It may be recalled
that the first International Consultation on AIDS and Human Rights was organized
by the then United Nations Centre for Human Rights, in cooperation with the
World Health Organization, in Geneva from 26 to 28 July 1989. In the report of
the first consultation (HR/PUB/90/2), the elaboration of guidelines to assist policy
makers and others in compliance with international human rights standards
regarding law, administrative practice and policy had already been proposed.
4. The Second International Consultation on HIV / AIDS and Human Rights
(E/CN.4/1997/37) brought together 35 experts in the field of AIDS and human
rights, comprising government officials and staff of national AIDS
programmes, people living with HIV / AIDS (PLHAs), human rights activists, academics,
representatives of regional and national networks on ethics, law, human rights
and HIV, and representatives of United Nations bodies and agencies,
non-governmental organizations and AIDS service organizations (ASOs). The list
of participants is attached as annex II to the present document.
5. The Consultation had before it five background papers which had been
commissioned for the purpose of eliciting specific regional and thematic
experiences and concerns regarding HIV / AIDS and human rights, prepared by
the following non-governmental organizations and networks of people living with
HIV / AIDS: Alternative Law Research and Development Centre
(ALTERLAW) (Philippines); Network of African People Living with HIV / AIDS (NAP +) (Zambia);
Colectivo Sol (Mexico); International Community of Women Living with HIV / AIDS
(ICW +) (global). The groups were asked, each within its specific context, to
identify the most important human rights principles and concerns in the context
of HIV / AIDS, as well as concrete measures that States could take to protect
HIV - related human rights.
6. The Consultation also had before it draft guidelines on HIV / AIDS and human
rights, prepared by Ms. Helen Watchirs (Australia) on the basis of the five
regional background papers and others materials consulted. In additional, the
international association Rights and Humanity conducted a global survey to
review existing strategies and identify other measures necessary to ensure
respect for human rights in the context of HIV / AIDS. An analysis of the 40
responses received to the survey were presented to the Consultation.
7. With regard to its methods of work, the Consultation formed four working
groups to discuss and finalize the draft guidelines, focusing on the theoretical
framework (WG.1), the institutional responsibilities and processes (WG.2) law
review, reform and support services (WG.3) and on the promotion of a supportive
and enabling environment (WG.4), respectively. In the second part of the
Consultation, participants were divided into a further three working groups in
order to discuss and elaborate recommendations concerning strategies to ensure
the dissemination and implementation of the guidelines, according to different
actors, as follows: States (WG.6), United Nations system and regional
intergovernmental bodies (WG.7) and non-governmental organizations (WG.8).
8. This document contains guidelines adopted at the Second International
Consultation on HIV / AIDS and Human Rights, held in Geneva from 23 to 25
September 1996, to assist States in creating a positive, rights-based response to
HIV / AIDS that is effective in reducing the transmission and impact of HIV /AIDS and consistent with human rights and fundamental freedom.
9. The elaboration of such guidelines was first considered by the 1989
International Consultation on AIDS and Human Rights, organized jointly by the
then United Nations Center for Human Rights and the World Health
Organization. The United Nations Commission on Human Rights and its Sub-Commission on
Prevention of Discrimination and Protection of Minorities has repeatedly
reiterated the need for guidelines. Increasingly, the international community has
recognized the need for elaborating further how existing human rights principles
apply in the context of HIV / AIDS and for providing examples of concrete
activities to be undertaken by States to protect human rights and public health in
the context of HIV / AIDS.
10. The purpose of these Guidelines is to assist States in translating international
human rights norms into practical observance in the context of HIV / AIDS. To
this end, the Guidelines consist of two parts: first, the human rights principles
underlying a positive response to HIV/AIDS and second, action-oriented measures
to be employed by Governments in the areas of law, administrative policy and
practice that will protect human rights and achieve HIV-related public health
goals.
11. The Guidelines recognize that States bring to the HIV / AIDS epidemic
different economic, social and cultural values, traditions and practices - a
diversity, which should be celebrated as a rich resource for an effective response
to HIV / AIDS. In order to benefit from this diversity, a process of participatory
consultation and cooperation was undertaken in the drafting of the Guidelines, so
that the Guidelines reflect the experience of people affected by the epidemic,
address relevant needs and incorporate regional perspectives. Furthermore, the
Guidelines reaffirm that diverse responses can and should be designed within the
context of universal human rights standards.
12. It is intended that the principal users of the Guidelines will be States, in the
persons of legislators and government policy makers, including officials involved in
national AIDS programmes and relevant departments and ministries, such as
health, foreign affairs, justice, interior, employment, welfare and education. Other
users who will benefit from the Guidelines include intergovernmental organizations
(IGOs), non-governmental organizations (NGOs), networks of persons living with
HIV / AIDS (PLHAs), community-based organizations (CBOs), networks on ethics,
law, human rights and HIV and AIDS service organizations (ASOs). The br0adest
possible audience of users of the Guidelines will maximize their impact and make
their content a reality.
13. The Guidelines address many difficult and complex issues, some of which may
or may not be relevant to the situation in a particular country. For these reasons,
it is essential that the Guidelines be taken by critical actors at the national and
community level and considered in a process of dialogue involving a broad
spectrum of those most directly affected by the issues addressed in the
Guidelines. Such a consultative process will enable Governments and communities
to consider how the Guidelines are specifically relevant in their country, assess
priority issues presented by the Guidelines and devise effective ways to
implement the Guidelines in their respective contexts.
14. In implementing the Guidelines, it should be borne in mind that achieving
international cooperation in solving problems of an economic, social, cultural or
humanitarian character and promoting and encouraging respect for human rights
and for fundamental freedoms for all, is one of the principal objectives of the
United Nations. In this sense, international cooperation, including financial and
technical support, is a duty of States in the context of the HIV / AIDS epidemic
and industrialized countries are encouraged to act in a spirit of solidarity in
assisting developing countries to meet the challenges of implementing the
Guidelines. Summary
15 HIV / AIDS continues to spread throughout the world at an alarming rate. The
widespread abuse of human rights and fundamental freedoms associated with HIV
/ AIDS has emerged in all parts of the world in the wake of the epidemic. In
response to this situation the experts at the Second International Consultation
on HIV / AIDS and Human Rights concluded the following:
a. The protection of human rights is essential to safeguard human dignity in the
context of HIV / AIDS and to ensure an effective, rights-based response to HIV /AIDS. An effective response requires the implementation of all human rights, civil
and political, economic, social and cultural, and fundamental freedoms of all
people, in accordance with existing international human rights standards
b. Public health interests do not conflict with human rights. On the contrary, it
has been recognized that when human rights are protected, fewer people become
infected and those living with HIV / AIDS and their families can better cope with
HIV / AIDS;
c. A rights-based, effective response to the HIV / AIDS epidemic involves
establishing appropriate governmental institutional responsibilities, implementing
law reform and support services and promoting a supportive environment for
groups vulnerable to HIV / AIDS and for those living with HIV / AIDS;
d.In the context of HIV / AIDS, international human rights norms and
pragmatic public health goals require States to consider measures that may
be considered controversial, particularly regarding the status of women and
children, sex workers, injecting drug users and men having sex with men. It
is, however, the responsibility of all States to identify how they can best
meet their human rights obligations and protect public health within their
specific political, cultural and religious contexts;
e.Although States have primary responsibility for implementing strategies
that protects human rights and public health, United Nations bodies,
agencies and programmes, regional intergovernmental bodies and
non-governmental organizations, including networks of people living with
HIV / AIDS, play critical roles in this regard.
16.The Consultation adopted Guidelines on HIV / AIDS and Human Rights, the
purpose of which is to translate international human rights norms into practical
observance in the context of HIV / AIDS. To this end, the Guidelines consist of
two parts: first, the human rights principles underlying a positive response to
HIV/ AIDS and second, action-oriented measures to be employed by Governments
in the areas of law, administrative policy and practice that will protect human
rights and achieve HIV-related public health goals.
17.There are many steps that States can take to protect HIV - related
human rights and to achieve public health goals. The 12 Guidelines
elaborated by the Consultation for States to implement an effective,
right-based responses are summarized below.
Guideline 1: States should establish an effective national framework for
their response to HIV / AIDS which ensures a coordinated, participatory, transparent
and accountable approach, integrating HIV / AIDS policy and
programme responsibilities across all branches of government.
Guideline 2: States should ensure, through political and financial support,
that community consultation occurs in all phases of HIV / AIDS policy
design, programme implementation and evaluation and that community
organizations are enabled to carry out their activities, including in the field
of ethics, law and human rights, effectively.
Guideline 3: States should review and reform public health laws to ensure
that they adequately address public health issues raised by HIV / AIDS,
that their provisions applicable to casually transmitted diseases are not
inappropriately applied to HIV / AIDS and that they are consistent with
international human rights obligations.
Guideline 4: States should review and reform criminal laws and correctional
systems to ensure that they are consistent with international human rights
obligations and are not misused in the context of HIV / AIDS or targeted
against vulnerable groups.
Guideline 5: States should enact or strengthen anti-discrimination and other
protective laws that protect vulnerable groups, people living with HIV/AIDS
and people with disabilities from discrimination in both the public and private
sectors, ensure privacy and confidentiality and ethics in research involving
human subjects, emphasize education and conciliation, and provide for
speedy and effective administrative and civil remedies.
Guideline 6: States should enact legislation to provide for the regulation of
HIV - related goods, services and information, as to ensure widespread
availability of qualitative prevention measures and services, adequate HIV
prevention and care information and safe and effective medication at an
affordable price.
Guideline 7: States should implement and support legal support services
that will educate people affected by HIV / AIDS about their rights, provide
free legal services to enforce those rights, develop expertise on HIV -related legal issues and utilize means of protection in addition to the
courts, such as offices of ministries of justice, ombudspersons, health
complaint units and human rights commissions.
Guideline 8: States, in collaboration with and through the community,
should promote a supportive and enabling environment for women, children
and other vulnerable groups by addressing underlying prejudices and
inequalities through community dialogue, specially designed social and
health services and support to community groups.
Guideline 9: States should promote the wide and ongoing distribution of
creative education, training and media programmes explicitly designed to
change attitudes of discrimination and stigmatization associated with HIV /AIDS for understanding and acceptance.
Guideline 10: States should ensure that government and the private section
develop codes of conduct regarding HIV / AIDS issues that translate human
rights principles into codes of professional responsibility and practice, with
accompanying mechanisms to implement and enforce these codes.
Guideline 11: States should ensure monitoring and enforcement mechanisms
to guarantee the protection of HIV- related human rights, including those
of people living with HIV / AIDS, their families and communities.
Guideline 12: States should cooperate through all relevant programmes and
agencies of the Unites Nations system, including UNAIDS, to share
knowledge and experience concerning HIV - related human rights issues and
should ensure effective mechanisms to protect human rights in the context
of HIV / AIDS at international level.
I. Guidelines For State Action
18.Recommended Guidelines for implementation by States in order to promote and
protect human rights in the context of HIV / AIDS are set out below. These
Guidelines are firmly anchored within a framework of existing international human
rights norms and are based on many years of experience in identifying those
strategies that have proven successful in addressing HIV / AIDS. The normative
principles together with practical strategies provide the evidence and ideas for
States to reorient and redesign their policies and programmes to ensure respect
for HIV - relative rights and to be most effective in addressing the epidemic.
States should provide adequate political leadership and financial resources to
enable implementation of these strategies.
19.The Guidelines focus on activities by States in view of their obligations
under international and regional human rights instruments. This is not to
deny, however, the responsibilities of other key actors, such as the private
sector, including professional groups such as health-care workers, the
media, and religious communities. These groups also have responsibilities
not to engage in discrimination and to implement protective and ethical
policies and practices.
A. Institutional responsibilities and processes
Guideline 1: National Framework
20.States should established an effective national framework for their response to
HIV / AIDS which ensures a coordinated, participatory, transparent and
accountable approach, integrating HIV/AIDS policy and programme
responsibilities, across all branches of government.
21.Guideline 1
Depending upon existing institutions, the level of the epidemic and
institutional cultures, as well as the need to avoid overlapping of
responsibilities, the following responses should be considered:
a. Formation of an inter-ministerial committee to ensure integrated
development and high-level coordination of individual ministerial national
action plans and to monitor and implement and additional HIV / AIDS
strategies, as set out below. In federal systems, an intergovernmental
committee should also be established with provincial/State, as well as
national representation. Each ministry should ensure that HIV / AIDS and
human rights are integrated into all its relevant plans and activities,
including:
Education;
Law and justice, including police and corrective services;
Science and research;
Employment and public service;
Welfare, social security and housing;
Immigration, indigenous populations, foreign affairs and development
co-operation;
Health;
Treasury and finance;
Defence, including armed services.
b. Ensuring that an informed and ongoing forum exists for briefing, policy
discussion and law reform to deepen the level of understanding of the epidemic,in which all political viewpoints can participate at national and subnational levels,
e.g. by establishing parliamentary or legislative committees with representation
from major and minor political parties.
c.Formation or strengthening of advisory bodies to governments on legal
and ethical issues, such as a legal and ethical subcommittee of the
interministerial committee. Representation should consist of professional
(public, law and education, science, bio-medical and social), religious and
community groups, employers and workers organizations, NGOs and
ASOs, nominees/experts and people living with HIV / AIDS.
d.Sensitization of the judicial branch of government, in ways consistent
with judicial independence, on the legal, ethical and human rights issues
relative to HIV / AIDS, including through judicial education and the
development of judicial materials.
e. Ongoing interaction of government branches with United Nations Theme
Groups on HIV / AIDS and other concerned international and bilateral actors
to ensure that governmental responses to the HIV / AIDS epidemic will
continue to make the best use of assistance available from the
international community. Such interaction should, inter alia, reinforce
cooperation and assistance to areas to HIV / AIDS and human rights. To be effective, the response to HIV / AIDS must mobilize key actors
throughout all branches of government and include all policy areas, since
only a combination of well-integrated and coordinated approaches can
address the complexities of the epidemic. In all sectors, leadership must be
developed and must demonstrate a dedication to HIV - related human
rights. Governments should avoid unnecessary politicization of HIV / AIDS
which diverts government energy and divides the community rather than
engendering a sense of solidarity and consensus in dealing with the
epidemic. Political commitment to dedicate adequate resources to respond
to the epidemic within States is essential. It is equally important that these
resources are channelled into productive and coordinated strategies. Roles
and lines of responsibility within government, including human rights issues,
should be clarified.
Most countries already have national AIDS committees. In some countries,there are also sub national committees. However, the persistent lack of
coordination in government policy and the lack of specific attention to
human rights issues relating to the HIV / AIDS epidemic suggest a need to
consider possible additional structures or to strengthen and reorient those
that exists to include legal and ethical issues. Several models of
co-coordinating committees and multidisciplinary advisory groups exist. Similar
coordination is essential within and between lower levels of government. It
is necessary to focus such coordination not only in creating specialized HIV
/ AIDS bodies, but also in securing a place for HIV / AIDS human rights
issues in existing mainstream forums, such as regular gatherings of Ministers
of, e.g. Health, Justice and Social Welfare. A multidisciplinary body with
professionals and community representation should exist to advise
Governments on legal and ethical issues. These bodies at the national level
should also ensure coordination with UNAIDS, its co-sponsors and other
international agencies (donors, bilateral donors and others) to reinforce
cooperation and assistance to areas relating to HIV / AIDS and human
rights.
States should ensure, through political and financial support that
community consultation occurs in all phases of HIV / AIDS policy design,programme implementation and evaluation and that community
organizations are enabled to carry out their activities, including in the fields
of ethics, law and human rights, effectively.
Community representation should comprise PLHAs, CBOs, ASOs,
human rights NGOs and representatives of vulnerable groups. Formal
and regular mechanisms should be established to facilitate ongoing
dialogue with and input from such community representative into HIV
- related government policies and programmes. This could be
established through regular reporting by community representatives
to the various government, parliamentary and judicial branches
described in Guideline 1, joint workshops with community
representatives on policy, planning and evaluation of State responses
and through mechanisms for receiving written submissions from the
community.
Sufficient Government funding should be allocated in order to support,
sustain and enhance community organization in areas of core support,
capacity-building and implementation of activities, in such areas as HIV -related ethics, human rights and law. Such activities might involve training
seminars, workshops, networking, developing promotional and educational
materials, advising clients of their human and legal rights, referring clients
to relevant grievance bodies, collecting data on human rights issues and
human rights advocacy.
Commentary on Guideline 2
Community partners have knowledge and experience that States need in
order to fashion effective State responses. This is the case particularly
with regard to human rights issues, as community representatives are
either directly affected by human rights problems or work directly with
those who are affected. States should, therefore, ensure that this
knowledge and experience are included in the development of HIV / AIDS
policy, programmes and evaluation by recognizing the importance of such
contributions and creating structural means by which to obtain them.The contribution of CBOs, NGOs, ASOs and PLHAs is an essential part of the
overall national response to the epidemic, in such areas as ethics, law and
human rights. As community representatives do no necessarily possess
organizational ability or skills for advocacy, lobbying and human rights work,this contribution should be enhanced by State funding for administrative
support, capacity-building, human resource development and
implementation of activities. Collection of complaints data by CBOs and
where the most serious HIV - related human rights problems are occurring
and what effective action should be implemented response.
B. Law review, reform and support services
Guideline 3: Public Health Legislation
States should review and reform public health legislation to ensure that
they adequately address the public health raised by HIV / AIDS, that their
provisions applicable to casually transmitted diseases are inappropriately
applied to HIV / AIDS and that they are consistent with international human
rights obligations.
Public health legislation should include the following components;
Public health law should fund and empower public health authorities to
provide a comprehensive range of services for the prevention and
treatment of HIV / AIDS, including relevant information and education,
access to voluntary testing and counselling, STD and sexual and
reproductive health services for men and women, condoms and drug
treatment, services and clean injection materials, as well as adequate
treatment for HIV / AIDS related illnesses, including pain prophylaxis.
Apart from surveillance testing and other unlinked testing done for
epidemiological purposes, public health legislation should ensure that HIV
testing of individuals should only be performed with the specific informed
consent of that individual. Exceptions to voluntary testing would need
specific judicial authorization, granted only after due evaluation of the
important considerations involved in terms of privacy and liberty.
In view of the serious nature of HIV testing and in order to maximize
prevention and care, public health legislation should ensure, whenever
possible, that pre and post-test counselling be provided in all cases. With
the introduction of home-testing, States should ensure quality control,maximize counselling and referral services for those who use such tests and
establish legal and support services for those are the victims of misuse of
such tests by others.
Public health legislation should ensure that people not be subjected to
coercive measures such as isolation, detention or quarantine on the basis
of their HIV status. Where the liberty of persons living with HIV is
restricted, due process protection (e.g. notice, rights of review/appeal,
fixed rather than indeterminate periods of orders and rights of
representation) should be guaranteed).
Public health legislation should ensure that information relative to the HIV
status of an individual be protected from unauthorized collection, use or
disclosure in the health-care and other settings and that the use of HIV
related information requires informed consent.
Public health legislation should ensure that information relative to the HIV
status of an individual be protected from unauthorized collection, use or
disclosure in the health-care and other settings and that the use of
HIV-related information requires informed consent.
Public health legislation should authorize, but not require, that health-care
professionals decide, on the basis of each individual case and ethical
considerations, whether to inform their patient's sexual partners of the HIV
status of their patient. Such a decision should only be made in accordance
with the following criteria; The HIV-positive person in question has been thoroughly
counselled; Counselling of the HIV-positive person has failed to achieve appropriate
behavioural changes; The HIV-positive person has refused to notify, or consent to the
notification of his/her partner(s); A real risk of HIV transmission to the partner(s) exists;The HIV-positive person is given reasonable advance notice; The identity of the HIV-positive person is concealed from the
partner(s), if this is possible in practice; Follow-up is provided to ensure support to those involved, as
necessary.
Public health legislation should ensure that the blood/tissue/organ supply is
free of HIV and other blood-borne diseases.
Public health law should require the implementation of universal infection
control precautions in health-care and other settings involving exposure to
blood and other bodily fluids. Persons working in these settings must be
provided with the appropriate equipment and training to implement such
precautions.
Public health legislation should require that health-care workers undergo a
minimum of ethics and/or human rights training in order to be licensed to
practice and should encourage professional societies of health-care workers
to develop and enforce codes of conduct based on human rights and
ethics, including HIV - related issues such as confidentiality and the duty
to provide treatment.
Guideline 4: Criminal Laws and Correctional Systems
States should review and reform criminal laws and correctional systems to
ensure that they are consistent with international human rights obligations
and are not misused in the context of HIV / AIDS or targeted at vulnerable
groups.
Criminal and/or public health legislation should not include specific offences
against the deliberate and international transmission of HIV but rather
should apply general criminal offences to these exceptional cases. Such
application should ensure that the elements of foresee ability, intent,causality and consent are clearly and legally established to support a guilty
verdict and/or harsher penalties.
Criminal law prohibiting sexual acts (including adultery, sodomy, fornication
and commercial sexual encounters) between consenting adults in private
should be reviewed, with the aim of repeal. In any event, they should not
be allowed to impede provisions of HIV / AIDS prevention and care services.
With regard to adult sex work that involves no victimizations, criminal law
should be reviewed with the aim of decriminalizing, then legally regulating
occupational health and safety conditions to protect sex workers and their
clients, including support for safe sex during sex work. Criminal law should
not impede provisions of HIV / AIDS prevention and care services to sex
workers and their clients. Criminal law should ensure that children and adult
sex workers who have been trafficked or otherwise coerced into sex work
are protected from participation in the sex industry and are not prosecuted
for such participation but rather are removed from sex work and provided
with medical and psycho-social support services, including those related to
HIV.
Criminal law should not be in impediment to measures taken by States to
reduce the risk of HIV transmission among injecting drug users and to
provide HIV - related care and treatment for injecting drug users. Criminal
law should be reviewed to consider:
The authorization or legalization and promotion of needle and syringe
exchange programmes; The repeal of criminalizing the possession, distribution and dispensing of
needles and syringes.
Prison authorities should take all necessary measures, including adequate
staffing, effective surveillance and appropriate disciplinary measures, to
protect prisoners from rape, sexual violence and coercion. Prison authorities
should also provide prisoners (and prison staff, as appropriate), with access
to HIV - related prevention information, education, voluntary testing and
counselling, means of prevention (condoms, bleach and clean injection
equipment), treatment and care and voluntary participation in HIV - related
clinical trials, as well as ensure confidentiality, and should prohibit
mandatory testing, segregation and denial of access to prison facilities,privileges and release programmes for HIV- positive prisoners.Compassionate early release of prisoners living with AIDS should be
considered.
Guideline 5: Anti-Discrimination and Protective Laws
States should enact or strengthen anti-discrimination and other protective
laws that protect vulnerable groups, people living with HIV / AIDS and
people with disabilities from discrimination in both the public and private
sectors that will ensure privacy and confidentiality and ethics in research
involving human subjects, emphasize education and conciliation and provide
for speedy and effective administrative and civil remedies.
General anti-discrimination laws should be enacted or revised to cover
people living with asymptomatic HIV infection, people living with AIDS and
those merely suspected of HIV or AIDS. Such laws should also protect
groups made more vulnerable to HIV / AIDS. Such laws should also protect
groups made more vulnerable to HIV/AIDS due to the discrimination they
face. Disability laws should also be enacted or revised to include HIV / AIDS
in their definition of disability. Such legislation should include the following:
The areas covered should be as broad as possible,including health care, social security, welfare benefits,
employment, education, sport, accommodation, clubs,trades unions, qualifying bodies, access to transport and
other services;
Direct and indirect discrimination should be covered, as
should cases where HIV / AIDS is only one of several
reasons for a discriminatory act, and prohibiting HIV/AIDS
vilification should also be considered; Independent, speedy and effective legal and/or
administrative procedures for seeking redress, including
such features as fast-tracking for cases where the
complainant is terminally ill, investigator powers to address systemic of discrimination in policies and
procedures, ability to bring cases under pseudonym and
representative complaints, including the possibility of
public interest organizations bringing cases on behalf of people living with HIV / AIDS;
Exemptions for superannuation and life insurance should
only relate to reasonable actuarial data, so that HIV/AIDS
is not treated differently from analogous medical conditions.
Traditional and customary laws, which affect the status and treatment of
various groups of society should be reviewed in the light of
anti-discrimination laws. If necessary, legal remedies should be made
available, if such laws are misused and information, education and
community mobilization campaigns should be conducted to change these
laws and attitudes associated with them.
General confidentiality and privacy laws should be enacted. HIV - related
information on individuals should be included within definitions of
personal/medical data subject to protection and should prohibit the
unauthorized use and/or publication of HIV- related information on
individuals. Privacy legislation should enable an individual to see his or her
own records event, complete and up to date. An independent agency
should established to redress breaches of confidentiality. Provision should
be made for professional bodies to discipline cases of breaches of
confidentiality as professional misconduct under codes of conduct
discussed below. Unreasonable invasion of privacy by the media could also
be included as a component of professional codes governing journalists.
People living with HIV / AIDS should be authorized to demand that their
identity and privacy be protected in legal proceedings in which on these
matters will be raised.
Laws, regulations and collective agreements should be enacted or reached
so as to guarantee the following workplace rights;
A national policy on HIV/AIDS and the workplace agreed upon in
a tripartite body;
Freedom for HIV screening for employment, promotion, training
or benefits;
Confidentiality regarding all medical information, including
HIV/AIDS status;
Employment security for workers living with HIV until they
are no longer able to work, including reasonable alternative working arrangement
Defined safe practices for first aid and adequately equipped first-aid kits; Protection for social security and other benefits for
workers living with HIV, including life insurance, pension,health insurance, termination and death benefits; Adequate health care accessible in or near
the workplace; Adequate supplies of condoms available free
to workers at the workplace; Workers participation in decision-making on
workplace issues related to HIV / AIDS;
Access to information and education programmes on
HIV/AIDS, as well as to relevant counselling and appropriate referral; Protection from stigmatization and discrimination by
colleagues, unions, employers and clients; Appropriate inclusion in workers compensation legislation
of the occupational transmission of HIV (e.g. needle stick
injuries), addressing such matters as the long latency period of infection, testing, counselling and
confidentiality.
Protection laws governing the legal and ethical protection of human
participation in research, including HIV - related research, should be
enacted or strengthened in relation to:
Non-discriminatory selection of participants, e.g. women,
children, minorities; Informed consent; Equitable access to information and benefits emanating from
research;
Counselling, protection from discrimination, health and
support services provided during and after participation; The establishment of local and/or national ethical review
committees to ensure independent and ongoing ethical review, with participation by members of the community
affected, of the research project; Approval for use of safe and efficacious pharmaceuticals,vaccines and medical devices.
Anti-discrimination and protective laws should be enacted to reduce human
rights violations against women in the context of HIV/AIDS, so as to reduce
vulnerability of women to infection by HIV and to the impact of HIV/AIDS.More particularly, laws should be reviewed and reformed to ensure equality
of women regarding property and marital relations and access to
oyment and economic opportunity, so that discriminatory limitations
are removed on rights to own and inherit property, enter into contracts and
marriage, obtain credit and finance, initiate separation or divorce, equitably
share assets upon divorce or separation, and retain custody of children.Laws should also be enacted to ensure women's reproductive and
sexual rights, including the right of independent access to reproductive and STD
health information and services and means of contraception, including safe
and legal abortion and the freedom to choose among these, the right to
determine number and spacing of children, the right to determine number
and spacing of children, the right to demand safer sex practices and the
right to legal protection from sexual violence, outside marriage, should be
consistent for males and females and the right of women and girls to refuse
marriage and sexual relations should not be treated any differently from any
other analogous medical condition in making decisions regarding custody,
fostering or adoption.
Anti-discrimination and protective laws should be enacted to reduce human
rights violations against children in the context of HIV/AIDS, so as to
reduce the vulnerability of children to infection by HIV and to the impact of
HIV/AIDS. Such laws should provide for children's access to HIV - related
information, education and means of prevention inside and outside school,
govern children's access to voluntary testing with consent by the child, in
line with the evolving capacities of the child, or by the parent or
appointed guardian, as appropriate, should protect children against mandatory
testing, particularly if orphaned by HIV/AIDS, and provide for other forms of
protection in the context of orphans, including inheritance and/or support.Such legislation should also protect children against sexual abuse, provide
for their rehabilitation if abused and ensure that they are considered
victims of wrongful behaviours, not subject to penalties themselves.
Protection in the context of disability laws should also be ensured for
children.
Anti-discrimination and protective laws should be enacted to reduce human
rights violations against men having sex with men, including in the context
of HIV/AIDS, in order, inter alia, to reduce the vulnerability of men who
have sex with men to infection by HIV and to the impact of HIV/AIDS.These measures should include providing penalties for vilification of peoplewho engage in same-sex relationships, giving legal recognition to same-sex
marriages and/or relationships and governing such relationships with
consistent property, divorce and inheritance provisions. The age of consent
to sex and marriage should be consistent for heterosexual and homosexual
relationships. Laws and police practices relating to assaults adequate legal
protection is given in these situations.
Law and regulations that provide for restrictions on the movement or
association of members of vulnerable groups in the context of HIV/AIDS
should be removed in both law (decriminalized) and law enforcement.
Public health, criminal and anti-discrimination legislation should prohibit
mandatory HIV - testing of targeted groups, including vulnerable groups.
Guideline 6: Regulation of Goods, Services and Information
States should enact legislation to provide for the regulation of HIV-related
goods, services and information, so as to ensure widespread availability of
qualitative prevention measures and services, adequate HIV prevention and
care information and safe and effective medication at an affordable price.
Laws and/or regulations should be enacted to enable implementation of a
policy of widespread provisions of information about HIV/AIDS through the
mass media. This information should be aimed at the general public, as well
as at various vulnerable groups that may have difficulty in accessing such
information. HIV/AIDS information should be effective for its designated
audience and not be inappropriately subject to censorship or
other broadcasting standards.
Laws and/or regulations should be enacted to ensure the quality and
availability of HIV tests and counselling. If home tests and/or rapid HIV test
kits are permitted on the market, they should be strictly regulated to
ensure quality and accuracy. The consequences of loss of
epidemiological information, the lack of accompanying counselling and the risk of
unauthorized uses, such as for employment at immigration, should be
addressed. Legal and social support services should be established to
protect individuals from abuses arising from such testing.
Legal quality control of condoms should be enforced and compliance with
the International Condom Standard should be monitored in practice.Restrictions on the availability of preventive measures, such as condoms,
bleach, clean needles and syringes, should be repealed and the provision of
these through vending machines in appropriate locations should be
considered, in the light of the increased accessibility and anonymity
afforded to clients by this method of distribution.
Duties, customs laws and value-added taxes should be revised so as to
maximize access to safe and effective medication at an affordable price.
Consumer protection laws or other relevant legislation should be enacted or
strengthened to prevent fraudulent claims regarding the safety and
efficacy of drugs, vaccines and medical devices, including those relating to
HIV/AIDS.
Guideline 7: Legal Support Services
States should implement and support legal support services that will
educate people affected by HIV/AIDS about their rights, provide free legal
services to enforce those rights, develop expertise on HIV- related legal
issues and utilize means of protection in addition to the courts, such as
offices of Ministries of Justice, ombudspersons, health complaint units and
human rights commissions.
States should consider the following features in establishing such services:
State support for legal aid systems specializing in HIV/AIDS case work,
possibly involving community legal aid centres and/or legal services
based in ASOs;
State support or inducements (e.g. tax reduction) to private sector law
firms to provide free pro bono services to PLHAs in areas such as
anti-discrimination and disability, health-care rights (informed consent and
confidentiality), property (wills, inheritance) and employment law;
State support for programmes to educate, raise awareness and build
self-esteem among PLHAs concerning their rights and/or to empower them
to draft and disseminate their own charters/declarations of legal and human
rights; State support for production and dissemination of HIV/AIDS legal
rights brochures, resource personnel directories, handbooks, practice
manuals, student texts, model curricula for law courses and continuing legal
education and newsletters to encourage information exchange and
networking should also be provided. Such publications could report on
case-law, legislative reforms, national enforcement and monitoring
systems for human rights abuses;
State support for HIV legal services and protection through a variety of
officers, such as Ministries of Justice, procurator and other legal offices,
health complaint units, ombudspersons and human rights commissions.
Commentary on Guidelines 3 to 7
Since laws regulate conduct between the State and the individual and
between individuals, they provide an essential framework for the
observance of human rights, including HIV-related human rights. The
efficacy of this framework for the protection of human rights depends on
the strength of the legal system in a given society and on the access of its
citizens to the system. However, many legal system worldwide are not
strong enough, nor do marginalized populations have access to them.
Nevertheless, the role of law in the response to HIV/AIDS may also be
overemphasized and provide a vehicle for coercive and abusive policies.
Although law may have an educative and normative role and may provide
an important supportive framework for human rights protection and
HIV/AIDS programmes, it cannot be relied upon as the only means by which
to educate, change attitudes, achieve behavioural change or protect
people's rights. Guidelines 3 to 7 above are, therefore, meant to encourage
the enactment of meaningful and positive legislation, to describe the basic
legal components necessary to provide support for the protection of
HIV-related human rights and effective HIV prevention and care
programmes and to be supplemented by all other Guidelines set out in this
document.
Guidelines 3 to 6
encourage law and law reform, which would bring national HIV - related laws into conformity with international and regional human
rights standards. Although the content of the strategies primarily addresses
formal law, law reform should also encompass traditional and customary
laws. The process of HIV/AIDS law review and reform should be
incorporated into the State's general activities regarding the observance of
human rights norms and be integrated into the national AIDS response,whilst involving the affected communities, ensuring that existing legislation
does not act as an impediment to HIV prevention and care programmes (for
the general population, as well as for vulnerable groups) and protecting
individuals against discrimination by both government actors and
private individuals or institutions. It is recognized that some of the
recommendations for law and law reform, particularly those concerning
the status of women, drug use, sex work and the status of men having sex
with men, might be controversial in particular national, cultural and religious
contexts. However, these Guidelines are recommendations to States: they
are based on existing international human rights standards and designed to
achieve a pragmatic approach to public health goals relative to HIV/AIDS.It is the obligation of States to establish how they can best meet their
international human rights obligations and protect the public health within
their political, cultural and religious contexts. The Office of the United
Nations High Commissioner for Human Rights, UNAIDS, its relevant
co-sponsors and other Untied Nations bodies and agencies, such as the
International Labour Organizations, can offer Governments technical
assistance in the process of law review and reform.
Guideline 7 urges that States (and the private sector) encourage and
support specialist and generalist legal services to enable PLHAs and
affected communities to enforce their human and legal rights through the
use of such services. Information and research resources on legal and
human rights issues should also be made available. Such services should
also address the issue of reducing the vulnerability to infection within and
the impact of HIV/AIDS on vulnerable groups. The location and format of
the information (e.g. plain and understandable language) provided via such
services should render it accessible to members of these groups. Models
exist in many countries.
C. Promotion of a supportive and enabling environment
Guideline 8: Women Children and other Vulnerable Groups States should, in collaboration with and through the community, promote a
supportive and enabling environment for women, children and other
vulnerable groups by addressing underlying prejudices and inequalities
through community dialogue, specially designed social and health services
and support to community groups.
States should support the establishment and sustainability of community
associations comprising members of different vulnerable groups for peer
education, empowerment, positive behavioural change and social support.
States should support the development of adequate, accessible and
effective HIV-related prevention and care education, information and
services by and for vulnerable communities and should actively involve such
communities in the design and implementation of these programmes.
States should support the establishment of national and local forums to
examine the impact of the HIV/AIDS epidemic on women. They should be
multisectoral to include government, professional, religious and community
representation and leadership and examine issues such as:
The role of women at home and in public life:
The sexual and reproductive rights of women and men,including
women's ability to negotiate safer sex and make reproductive choices;
Strategies for increasing educational and economic opportunities for women; Sensitizing service deliverers and improving health care
and social support services for women; The impact of religious and cultural traditions on women.
States should implement the Cairo Programme of Action of the International
Conference on Population and Development and the Beijing Declaration and
Platform for Action of the Fourth World Conference on Women. Primary
health services, programmes and information campaigns in particular should
include a gender perspective. Violence against women, harmful traditional
practices, sexual abuse, exploitation, early marriage and female genital
mutilation, should be eliminated. Positive measures, including formal and
informal education programmes, increasing work opportunities and support
services, should be established.
States should support women's organizations to incorporate HIV/AIDS and
human rights issues into their programming.
States should ensure that all women and girls of child-bearing age have
access to accurate and comprehensive information and counselling on the
prevention of HIV transmission and the risk of vertical transmission of HIV,
as well as access to the available resources to minimize that risk, or to
proceed with childbirth, if they so choose.
States should ensure the access of children and adolescents to adequate
health information and education, including information related to HIV/AIDS
prevention and care, inside and outside school, which is tailored
appropriately to age level and capacity and enables them to deal positively
and responsibly with their sexuality. Such information should take into
account the rights of the child to access to information, privacy,
confidentiality, respect and informed consent and means prevention, as
well as the responsibilities, rights and duties of parents. Efforts to educate
children about their rights should include the rights of persons, including
children, living with HIV/AIDS.
States should ensure that children and adolescents have adequate access
to confidential sexual and reproductive health services, including HIV/AIDS
information counselling, testing and prevention measures such as condoms,
and to social support services if affected by HIV/AIDS. The provision of
these services to children/adolescents should reflect the appropriate
balance between the rights of the child/adolescent to be involved in
decision-making according to his or her evolving capabilities and the rights
and duties of parents/guardians for the health and well-being of the child.
States should ensure that persons employed to child-care agencies,
including adoption and foster-care homes, receive training in the area of
HIV-related children's issues in order to deal effectively with the special
needs of HIV-affected children including protection from mandatory testing,discrimination and abandonment.
States should support the implementation of specially designed and
targeted HIV prevention and care programmes for those who have less
access to mainstream programmes due to language, poverty, social or legal
or physical marginalization, e.g. minorities, migrants, indigenous peoples,
refugees and internally displaced persons, people with disabilities, prisoners,sex workers, men having sex with men and injecting drug users.
Commentary on Guideline 8
States should take measures to reduce the vulnerability, stigmatization
and discrimination that surround HIV/AIDS and promote a supportive and
enabling environment by addressing underlying prejudices and inequalities
within societies and a social environment conductive to positive behaviour
change. An essential part of this enabling environment involves the
empowerment of women, youth and other vulnerable groups to deal with
HIV/AIDS by taking measures to improve their social and legal status,involving them in the design and implementation of programmes and
assisting them to mobilize their communities. The vulnerability of some
groups is due to their limited access to resources, information, education
and lack of autonomy. Special programmes and measures should be
designed to increase access. In many countries, community-based
organizations and NG0s have already begun the process of creating a
supportive and enabling environment in their response to the HIV epidemic.Governments must recognize these efforts and lend moral, legal, financial
and political support to strengthen them..
Guideline 9:
Changing Discriminatory Attitudes Through Education,Training and the Media
States should promote the wide and ongoing distribution of creative
education, training and media programmes explicitly designed to change
attitudes of discrimination and stigmatization associated with HIV/AIDS to
understanding and acceptance.,/p>
States should support appropriate entities, such as media groups, NG0s and
networks of PLHAS, to devise and distribute programming to promote
respect for the rights and dignity of PLHAs and members of vulnerable
groups, using a broad range of media (film, theatre, television, radio, print,
dramatic presentations, personal testimonies, Internet, pictures, bus
posters). Such programming should not compound stereotypes about these
groups but instead dispel myths and assumptions about them by depicting
them as friends, relatives, colleagues, neighbours and partners.Reassurance concerning the modes of transmission of the virus and the
safety of everyday social contact should be reinforced.
States should encourage educational institutions (primary and secondary
schools, universities and other technical or tertiary colleges, adult and
continuing education), as well as trades unions and workplaces to include
HIV/AIDS and human rights/non-discrimination issues in relevant curricula,
such as human relationships, citizenship/social studies, legal studies, health
care, law enforcement, family life and/or sex education, and
welfare/counselling. ,/p.
States should support HIV-related human rights/ethics training/workshops
for government officials, the police, prison staff, politicians, as well as
village, community and religious leaders and professionals.
States should encourage the media and advertising industries to be
sensitive to HIV/AIDS and human rights issues and to reduce sensationalism
in reporting and the inappropriate use of stereotypes, especially in relation
to disadvantaged and vulnerable groups. A training approach of this kind
should include the production of useful resources, such as handbooks
containing appropriate terminology, which would serve to eliminate use of
stigmatizing language; and a professional code of behaviour in order to
ensure respect for confidentiality and privacy.
States should support targeted training, peer education and information
exchange for PLHA staff and volunteers of CB0s and AS0s as well as for
leaders of vulnerable groups as a means of raising their awareness of
human rights and have the means to enforce these rights. Conversely,
education and training should be provided on HIV-specific human rights
issues to those working on other human rights issues.
States should support the use of alternative efforts such as radio
programmes or facilitated group discussions to overcome access problems
for individuals who are located in remote or rural areas, are illiterate,homeless or marginalized and without access to television, films and videos
and specific ethnic minority languages.
Commentary on Guideline 9
The use of formal standards and their implementation through government
process and law alone cannot change the negative attitudes and prejudices
surrounding HIV/AIDS into respect for human rights. Public programming
explicitly designed to reduce the existing stigma has been shown to help
create a supportive environment, which is more tolerant and understanding.
The reach of such programming should be a mixture of general and focused
programmes using various media, including creative and dramatic
presentations, compelling ongoing information campaigns for tolerance and
inclusion and interactive educational workshops and seminars. The goal
should be to challenge beliefs based on ignorance, prejudices and punitive
attitudes by appealing to human compassion and identifying with visible
individuals. Programming based on fear can be counter-productive by
engendering discrimination through panic.
Guideline 10: Development of Public and Private Sector Standards
And Mechanisms for Implementing These Standards 41.States should ensure that government and the private sector develop codes
of conduct regarding HIV/AIDS issues that translate human rights principles into
codes of professional responsibility and practice, with accompanying mechanisms
to implement and enforce these codes.
States should require or encourage professional groups, particularly
health-care professionals, and other private sector industries (e.g. law,
insurance) to develop and enforce their own codes of conduct addressing
human rights issues in the context of HIV/AIDS. Relevant issues would
include confidentiality, informed consent to testing, the duty to treat, the
duty to ensure safe workplaces, reducing vulnerability and discrimination
and practical remedies for breaches/misconduct.
States should require that individual government departments devise clear
guidelines on the extent to which their policies and practices reflect
HIV-related human rights norms and their enforcement in formal legislation
and regulations, at all levels of service delivery. Coordination of these
standards should occur in the national framework described in Guideline1
and be publicly available, after involvement of community and professional
groups in the process.
States should develop or promote multisectoral mechanisms to ensure
accountability. This involves the equal participation of all concerned (i.e.
government agencies, industry representatives, professional associations,NG0s, consumers, service providers and service users). The common goal
should be to raise standards of service, strengthen linkages and
communication and assure the free flow of information.
Commentary on Guideline 10
41.The development of standards in and by the public and private sectors is
important. First, they translate human rights principles into practice from an
insider's perspective and reflect more closely the community's
concerns. Second, they are likely to be more pragmatic and acceptable to the sector involved.
Third, they are more likely to be "owned" and implemented if developed by the
sector itself. Finally, they might have a more immediate impact than legislation.
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